Duchenne Map empowers DMD patients and families to make better healthcare decisions.

Our mission is to connect the Duchenne world


Finding information shouldn’t be hard.

Find and structure specialised DMD healthcare in a way that’s best for you. Access disease specific up-to-date information. All in one place.


Personalised healthcare journey.

Create a personal healthcare journey by visualising options. Eliminate misinformation. Share knowledge and educate yourself.


Verified DMD information. 

Follow clinical trials and research projects through every stage. Direct contact with healthcare providers. Know where to find information to make healthcare decisions.

Our Team

Duchenne Data Foundation chair

Duchenne Data Foundation co-chair

Data Protection Officer

Patient Engagement Coordinator

Communications Coordinator


President  – Parent Project Muscular Dystrophy

Chair – World Duchenne Organization

Access to everything you need to make better DMD healthcare decisions.